Showing posts with label lupus. Show all posts
Showing posts with label lupus. Show all posts

Friday, May 18, 2012

Knit till I find my Wit

     I don't know what to talk about today. Wendy is in the hospital again. She can't even tell me why, other than some symptoms. I'm going to assume it has to do with her lupus. I hate this disease. It may have brought us together in a way nothing else could, but it's robbing me of the time I want to spend with her. I can't talk to her on the phone when she's at one of her eleventy-seven doctor's office visits every month. With her in the hospital, I can't even chat with her online. I can't bring her home to visit, because travel aggravates flares. She can't go to furry events to meet all my wonderful furry friends, because large groups breed illnesses that will make her sick. I can't go to visit her, because I am poor and barely able to support myself as it is. Airfare and time off work are a bit much for me just yet.
     You may or may not know, but May is Lupus Awareness Month, and I promised I would wear purple every day this month. Only one or two people from work have asked about the purple bandanna I've been wearing everyday, and no one else. I feel like I'm failing at raising awareness, and failing my sister.
     I feel like I'm spiralling out of control. Like I've lost any sense of purpose in life. I'm doing a good job of not feeling the need to take care of everyone around me. I take time to think about myself every day. I do need more of a social life, but I need to figure out how to manage that while keeping my third-shift job that pays pretty decent money. I'm having hell trying to juggle friendships in such a way that I am not neglecting one friend just to prove that I value someone else. It hurts me to be torn in this way. I feel guilty for wanting to do anything on my weekends, because I'm certain to upset someone. And I never know who I'm going to offend with every decision I make.
     So I try to entertain myself. Keep my hands busy enough that my mind doesn't realize it isn't occupied. I have three projects in the works so far. My Rainbow Headband:
My Coral Kerchief:
And my Random Baby Blanket:
     I finished my Midsummer Night's Shawl and really need to convince someone to take a pic of me holding it up. It will look so much more awesome that way, rather than just spread out on the bed. Getting back to the knitting after even a short break is helping me to calm down and find my center. But at the same time, it's starting to feel like work and I never wanted that for my knitting. The head-coverings are still giving me pride of accomplishment, but when I needed to knit up a "washcloth" on short notice, something that needed about two hours of concentration took me two weeks!
    Like I said. I just don't know. I'm going to head back to my bed soon, prop up my feet, and get to work on my kerchief. If I can get the pattern to settle down and behave, I intend to make something similar for Hazy. But hers will probably be on larger needles, and might be even more lacy! At least that will give me something else to try and have done by the end of this month. I just wish I had a clue how much yardage I was using so I could enter these kerchiefs into my Knit-meter...  

Tuesday, December 27, 2011

Stumbling through life

     As I have mentioned before, my sister has lupus. For those who may not know what lupus is, it's an auto-immune disorder, where the body begins attacking its own organs. Yeah, your immune system basically gets really hyperactive and confuses your lungs with the flu! Actually, it can attack any organ, including the brain or the heart. There is no cure. And it can be fatal. BUT, it doesn't have to be. So, said sister has been trying for some time to do her best to try raising awareness of this life-threatening disease. And I like the idea of trying to help her, so we started a Facebook group for the friends and family of those who have been diagnosed with lupus. If you're interested in supporting those who support lupies, it is at Someone I Love Has Lupus.
     This all started a few months ago when she said she wanted to start a blog. After weeks of discussing format, we began discussing a name for her blog. She wanted to use her blog to spread awareness, but didn't want to be solely as someone with lupus. Then she got intimidated about how difficult it would be to actually write a blog. So I was conned into starting this blog you are reading. Yesterday, she tells me she is contemplating having a group for family members of lupies, so they could have a place to share what they are going through, caring for someone else. She understood that caregivers/emotional supporters would need a place to talk about how difficult their family can be. Then this morning, she told me it's all my baby! *sigh*
     It seems I tend to fall backwards into things in this life. From getting hired at a job after applying for a lower-paying position, to becoming my sister's reluctant champion, I don't know what I did, but I wouldn't have it any other way.